Archive for the ‘brain cancer awareness’ Category

MRI

Posted: September 20, 2011 in brain cancer awareness, developments, treatment

image courtesy of Lewis center for Neuro Imaging http://lcni.uoregon.edu

(the person pictured above is not me) ūüôā

photo courtesy of Lewis Center for Neuro Imaging

I had my MRI done last Saturday at St. Luke’s Q.C. Its a one hour session. If you’re claustrophobic, you won’t like it. The tube is so small that you’ll think that its caving in on you. I don’t mean to scare but that’s just how it feels when you’re reeled in. The room is cold,the MRI machine is cold and noisy. You lie on your back, and for an hour or more(depending on the body part that will be MRI-ed) and you’re not allowed to move. Oh and you’re strapped in the bed to prevent you from moving. You’ll be given ear muffs to help with the loud noise and a panic button in case claustro kicks in. Good thing is Nina was allowed to be beside me during the session. When the session starts you’ll here a lot of different construction-like noise, sometimes star trek-like noise as if you’re engaged in inter-galactic dog fight. That’s my cue to start my prayers, to take my mind off claustro, boredom and to ask HIM for good results. Got the results yesterday from my doctor, well, the result was same as last time, the tumor is still there but at least it did not multiply and it didn’t grew bigger. I said “thank God!! I’ll take it!” another good news is : no more chemo yet, i will be monitored via MRI every 3mos. I will also be taking a supplement to improve my immunity (Zilongjin). Please let me know if you’ve heard of it. Still, i’m begging for your prayers for complete healing. Thank so much for the support in whatever form, to you who’s reading this, you’ve helped extend my stay here on earth ūüôā salamat!

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Posted: September 13, 2011 in brain cancer awareness, random entries

someone once asked me “how am i doing?” ¬†for someone who doesn’t have cancer you just take whatever the response is, but you don’t really get how it really is. ¬†i used to be that person, outside looking in. now its the opposite, when i heard that question, all i can utter was, “difficult”. difficult in many ways physical, mental, emotional, financial and so on.

physical there would be days when you just dont want to get up, your body tells you to slow down but i wont. because i want to play with my kids as long as i can til i am here, because nobody knows. i still get up to go to work, because there are bills medicines, treatments and debts to pay. i still get up because i want my wife and my family to know that i appreciate them even when i don’t look like it, even when at times i feel i’m a heavy burden. i can’t help but think sometimes. i still get up because i dont want to give up, its not an option!¬†its been a long fight, not sure where i am exactly but i pray that i am getting there.

mental, there would be times that i get scared, scared that i might not wake up the next day, talk to my kids or kiss my wife, my life feels and is, in fast forward. you don’t see it in me but i am. you only see the smiles and the laughter that i can muster but deep within i’m scared as a child. ¬†scared that i might not be there when my kids grow up, get married, have children. ¬†i just thank God every single morning that i wake up and feel the air fill my lungs.

emotional, ¬†i never tear up after communion, i never used to cry when i pray, i guess when you’re praying for extension…. ¬† there would be times that i cry for no reason when i am just watching my kids play together. fight over a toy they both like, watch them sleep. ¬†when they give me a hug ¬†and a kiss for no reason.

financial, cancer in whatever form is a rich man’s disease. it will really drain you dry. sometimes i just notice myself staring blankly and ask…why me?

jolo: daddy are you still sick?

me: (can i say no?)

i was cleaning up my old portable external HDD When an FB friend posted a video of george harrison’s song”all things must pass ¬†i remembered some of my friends sms and fb and email msgs ¬†telling me that this too shall pass in God’s own sweet time when they learned about my condition here is a part of the song now i’m really not familiar with the song even though i was a¬†Beatles¬†nut back in high school but the lyrics surprised me, very apt.

Now the darkness only stays at nighttime !

In the morning it will fade away

Daylight is good At arriving at the right time

It’s not always Going to be this grey

All things must pass

All things must pass away

All things must pass All things must pass away

before i forget let me give a BIG SHOUT OUT TO THE TGMP CREWJiLL PAMMY TATIN GIFF JOLO KHA AND TO ALL THOSE WHO JOINED/PARTICIPATED IN THE PROJECT GOD BLESS YOU ALL!!I OWE YOU GUYS BIG TIME!!WE’LL LET YOU KNOW ASAP FOR ¬†the next TGMP-mugshots SESSION ūüėÄ THANKS AGAIN!!!

today will be my4th day this week for i.v, chemo( 5th dose or cycle)then hopefully i’m checking out by¬†Friday thank Godi have no major side effects so far like¬†vomiting,¬†dizziness,one of my nurses said that it seems i’m reacting positively with my treatments my blood work ¬†are all ok as well according to my neuro-oncologist i hope and pray it stays the same ¬†Until i get home c¬†ūüėÄ i’m missing my boys so much, ¬†Jolo¬†had slight fever last weekend then¬†Lucas¬†just last¬†Tuesday¬†but they are all ok now.

Jill Lejano, Pam Pastor and Tatin Yang joined me and my sister Ella while waiting for Nina last night here at the hospital:D thank you guys! had a hearty discussion and tons of laughter what do you expect? lol!!pam good luck with those letters:)

i also want to thank a lot of additional angels who greeted and supported me, don’t want to name names but you know who you are thank you guys , you have extended my stay here on earth God bless you all!! thank you to my prayer warriors and cheering squads, schoolmates classmates,¬†batch mates,(feu’99/RCC’95,’94)

 

yep! i wrote that note on nina's board ūüôā it just fits perfectly.

shy kalbo

see you guys on the 20th of march!!!

TGMP <<< CLICK ME!!!

 the crew@bellini'skha &gab chee kee

gab chee kee & giff

tatin yang

bts photos, thanks to (C) kha santia for the photos

ÔĽŅÔĽŅhttp://lifestyle.inquirer.net/super/super/view/20110312-324830/Gray-matters

www.thegraymattersproject.com

me

thank you so much to all my angels , you know who you are, thank you for your prayers, support love and cheers smiles, hugs kisses, messages. ¬†i can never thank you angels enough no words can describe how overwhelmed i am and my family at this point in our lives, from the very bottom of our hearts, thank you very very much. ¬†we still have a long way to go but with HIM and you guys around there’s no falling back. ¬†ūüėÄ

my RT and OC ended yesterday but i will be given i.v. chemo for the next few days, again this is related to the pnet foci stuff ¬†a couple of blogs ago. i’ll be confined for 5 days at st. luke’s global next week (march14)for treatment and to be closely monitored by my doctor ¬†will be needing tons and tons of prayers:) i already had one ¬†i.v. session done so this is to continue the rest of the treatment.

PS:we’ve been getting a lot of inquiries regarding the graymattersproject.com campaign we’re still working on the site and the teasers as for now please read here

today is the last day of my radiation therapy(30)days 5x a¬†week and 42days (7x a week) of my Oral chemo therapy(temodal capsules)then it’ll be rest day mode for me for 28 days until next MRI as¬†I’ve¬†mentioned previously but i ¬†still have a set of i.v. chemo scheduled at a later time yet still to be determined by my neuro oncologist this is still in relation to the pnet foci squatter in my brain but let’s talk about that at a later time. today i just want to thank God f or letting me finish my therapies with minimal side effects like hair loss, dry throat, cold sores slight fatigue,no seizures, no headache,no nauseous sensation no memory loss,no fever.these alone are big blessings already and I lift everything to HIM as my offering:) amen!!

i just want to give a shout out to a number of my cousins Dr.Mark Domingo-Go who just recently passed the medical board exam!! rakrakan na!!and RN Esperanza-Domingo de Castro for passing the nursing board exams!!

to Hannah Lee Domingo for passing almost every single collegiate entrance exams(ADMU/UP/UST/UA&P SAN PA BA? HAHA!! CONGRATS!!

Harry Domingo and Patricia de Castro happy graduation & congratulations!!

and a big shout out as well to the gray matters project Team I OWE YOU BIG TIME GUYS!!! GOD BLESS YOU ALL!!

GRAY MATTERS

Jason Buera wants to know: “What’s in your head?”

Before December 2010, there were a lot of things in Jason’s head – his wife Nina, his three-year-old son Jolo, his six-month-old baby Lucas, his work, his love for photography, his passion for running, the next wedding he’ll shoot. He thought about cars, Playstation games, food. He thought about normal things.

But right around Christmas, Jason noticed changes in his body. His left hand was moving unusually slow and everything he ate seemed bland. His left hand couldn’t hold on to the lightest of things – his grip wasn’t as strong as it was before.

Doctors found two mass lesions in his brain. And in January, after brain surgery and a series of tests, the doctors had news for Jason – he had brain cancer. Brain cancer. At 32 years old.

Since then, Jason has been undergoing chemotherapy and radiation treatment. He, his family and friends are strong and determined to win this fight against cancer.

And while his head is still full of thoughts of the things he loves, he now has to think of things like steroids, tumors and anti-bodies.

Battling cancer is difficult physically, emotionally and financially ‚Äď even more so when you have two small children to raise ‚Äď so Jason’s friends have kicked off a series of projects that aim not just to raise funds for Jason’s treatment but to help spread awareness about brain cancer.

Because it can happen to anyone.

You can help too.

Photographer Jill Lejano, who Jason often joins for wedding shoots and who has shot everyone from Heart Evangelista and Lenka to Glee’s Harry Shum Jr., we will hold the first “Gray Matters” photo session on March 20 at Daylight Studio in Cubao X.

Participants will pay a fee of P1000 (there’s a student rate of P500) to join the shoot. Two kinds of photographs will be taken of each participant – one is their portrait and the other is their special Gray Matters mugshot. They will be asked to answer the question “What’s in your head?” and pose with their answers mugshot-style. Participants will be encouraged to upload their photos to Facebook, Twitter, Tumblr and other social networking sites to help spread awareness about brain cancer.

All proceeds from the photo session will be used to fund Jason’s treatment.

If you wish to participate, e-mail thegraymattersproject@gmail.com.